Early this year we were alerted to the plight of a 14-year old Kokoda schoolgirl who needed a a lifesaving heart operation – one that had to be performed overseas due to the medical complexity of her condition.
‘Our daughter’s health is our priority and the further delay of her operation has been a concern for us which is becoming desperate, thereby resulting in our plea for your assistance’ wrote Mrs Doreen Dumu, a nurse at the Kokoda Hospital on 29 January 2019.
Her daughter, Freda, has a ‘tetralogy Fallot‘ which is a serious congenital heart defect. The surgery she requires is not available in PNG and the cost of the operation and rehabilitation in Australia was in excess of $100,000.
We contacted the PNG Kokoda Track Authority (KTA) and suggested that they get every trek operator to submit the name and contact details of each of the trekkers they would be leading across the trail during the Anzac period – a practice that should have been put in place a decade ago to capture the contact details of the 50,000 Australians who have trekked Kokoda since then. Unfortunately numerous requests to establish such a database for fundraising purposes over the years have been ignored.
Their refusal to assist Freda was perplexing in view of an earlier decision by their Acting CEO to ‘donate’ $150,000 to an Australian NGO to hand-out as ‘educational supplements‘ to local villagers on and beyond the Kokoda Trail. Calls for those funds to be reimbursed have been ignored.
We also sought assistance from a close friend and supporter, Jeff Hudson, a Director of the Children’s First Foundation. Jeff worked tirelessly to help ‘create the miracle‘ for Freda but as it transpired it was beyond their resources.
We then tried Rotary Oceana Medical Aid for Children (ROMAC). They were also keen to assist but there seemed to be an issue with Children’s Hospitals in NSW accepting patients from the Pacific.
We wrote to the Minister for Health to see if he could check it out on our behalf but didn’t receive a response.
We also arranged for Emily Kleing from the Oro Community Development Project to assist us with any liaison necessary as she is now residing in Port Moresby, We had previously worked with Emily to help build a TB Isolation Ward at the Popondetta Hospital,
We then published a Facebook post to ‘help reverse the death sentence for a 14 year-old Kokoda schoolgirl’ and invited trekkers to contact the KTA to support our fundraising efforts but they continued to ignore her plight.
Just as we neared the edge of desperation an ‘Angel’ emerged from PNG:
I am so very pleased to inform you that Pastor Dr Kirk head of our Paediatric cardiology partners “ For Hearts and Souls” will be organizing free surgery for Freda in San Antonio, Texas USA.!!
Dr Kirk and team have successfully provided minimal invasive approach to repairing congenital heart defect for 13 PNG children at our PIH cath lab and arranged treatment for 2 very complicated children at the Mayo clinic in the US.
Freda‘s family prayers ensured that I read your post on FB ( I don’t do FB regularly anymore) and was able to contact Dr Kirk before he and his team left Moresby this afternoon, upon completion of their second mission at PIH.
We will contact the patient and you once we receive more information from US.
I trust the Kokoda track foundation will be able support the travel expenses for the girl and a guardian.
FB has received bad press recently for invasion if privacy and manipulations etc but I am glad it connected us to help this girl and hopefully save her life!
We responded immediately and agreed to underwrite any flight and accommodation costs for Freda and her guardian – I contacted the Chairman of Network Kokoda, Andrew Tracy, who agreed to support any necessary fundraising endeavours.
As it transpired I had met Dr Amyna Sultan 10 years ago but had never seen her.
I had been evacuated from the trail by helicopter after losing my sight half-way through a trek. It was a Saturday afternoon and she was off-duty but responded to an urgent call for help from the duty nurse at the Pacific International Hospital.
If she hadn’t I would be blind today. It was still a close call however and eventually took five weeks of intense specialist treatment at the Sydney Eye Hospital to restore it as best they could. You never forget things like that!
I later learned that Dr Amyna Sultan OBE is a Director and Consultant Ophthalmologist at the Pacific International Hospital in Port Moresby. She is not only a highly qualified specialist but is renowned for her philanthropic work throughout PNG.
Just as we were getting concerned about the time it was taking to arrange for Freda’s operation in Texas, USA our ‘Angel’ made another appearance late yesterday:
We finally have good news for Freda!
We have received a sponsor’s letter to apply for a US visa.
Surgery is planned for late January.
Thanks for your support.
Regards and Happy holidays!
Christmas doesn’t get any better than that for Freda, her parents, Doreen and Panuel – and for us! I’m now looking forward to catching up with Dr Amyna when I’m next in Port Moresby so that I can finally get to see her and thank her once again.